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I know this will be very unsatisfying for those still suffering, but i d have to say it just came back.
Im pretty sure none of my actions was responsible for this.
I also had a very deep depression and wasnt able to sleep more than 2-3 hours in a row, waking up in a sweat bath.
All this things went away after ca. 1 month.
A lot of other symptoms still remain. Im now 4,5 months into this.
I know this will be very unsatisfying for those still suffering, but i d have to say it just came back.
Im pretty sure none of my actions was responsible for this.
I also had a very deep depression and wasnt able to sleep more than 2-3 hours in a row, waking up in a sweat bath.
All this things went away after ca. 1 month.
A lot of other symptoms still remain. Im now 4,5 months into this.
So you now have just ED problems?do you have ejaculation problems also??(delay,anorgasmia etc)
There is a report also in the propeciahelp forum:
[Edited link out]
''This guy might be on to something. i dident post here for a loong time ...
my problem was that i had ed problem caused by roacutane( age 16), and a hairloss problem that started in my early 20.
knowing i am in a place with ariguably two of the worst problems a man could have, and no answer to niehter, i decided to give propecia a chance about 5 months ago - which is the main reason i dident post here , feeling bad i am taking this horrible drug but i had to give it a shot on my hair problem, knowing again that i have no sex life at all pretty much.
after 3 months with it , i decided i cant give propecia a chance to clear my slight chance of ever recovering from my ed problem i stoped.. i have to say, 4 days after i stoped, i started having my spontanous erections back, morning ererctions also came back to me, wanting sex like every 24 year old should have came back also. i almost feel as normal .. thinking it just might be temporary i dident do much . but hey.. i think i am almost back as any normal guy (allthough i cant really recall how that is after 7 years feelin g nothing and having no idea i have a problem untilll runing in into this forum )
well , right now i figured ill check on into stuff aroun,, and came across this thread.. i thought of posting my last experiince though it might help others, i hope i am good as normal, not sure! if my experince could help cure you guyss, we might be on to something here.. hope again that all of you will cure from your problems.''
The guy who was sued by the Spanish distributor of isotretinoine has told me that he wants to forget this affair. he feels ansiety when he remembers it and hw asked to stop talking about. So, I can't share more information. The only thing I know is what I already said, he feels much better. Perhaps his body healed himself, or perhaps because of Vitamine E + Omega3 (fish oil).
Regarding porn, I won't discuss about it anymore because I consider it off topic. Before that I would liket to recommend an article to Indigo in order to improve his erections. I founf it in a Spanish porn site and it is worth of translating it. If you don't understand any paragraph it will be a pleasure to help you: [Edited link out](don't connect from a mobile device because it redirects to a paid site).
Please, focus on the nitric oxide information, citrulline, watermelons, and other recommendations such sleeping naked.
thanks for the answer. So they had no sexual issues. I was just looking for what crank calls the null hypothesis in regards to the Dr Pezzi method. This method sounds so stupid that it might just work. But it would also imply that post accutane sexual stuff is just similar but not the same as Post Finasterid Syndrome. Ive red about some guys who suffered from PFS, took Propecia again after a while (really, dont ask me why...) and Problems got worse.
It isnt a method i would try immediately, because im no friend 5alphareductase-inhibitors anymore, but cant be wrong to have an exit plan in case nothing else works. Would be nice if anyone could post if he knows something about it.
Hello there!
I'm glad I found this community of long-term-sufferers, in which I also belong. I want to thank all the active users that have been raising the spirit and trying to find a cure or a viable treatment for our condition, especially Dubya_B and Crane.
I took my first accutane pill three years ago for moderate acne. And me, as for many others, hope that I'd done at least a little research before doing so. The derm didn't mention the possible sexual side-effects. I didn't experience a sudden crash of libido or performance right away, but I wasn't dating at that time and wasn't monitoring nocturnal erections, so it could be that it was quite fast. I experienced first encounter with it about 3 months into the treatment when I couldn't performn during an intercourse with g/f. I googled and found out that it could be permanent ED due isotretinoin. I got a panic attack and called my derm to check whether she had any thoughts on this, but she denied that there could be any connection and said to be 100% sure and also mentioned that if it somehow was the case, it was due to depression and would be only temporary. So I decided to continue the treatment with half dose (used to be 40mg day, continued with 20mg) and that seemed to lighten up my mood. During the treatment I didn't have too much trouble with sex, even though libido was very low and spontaneous/morning erections were beginning to be more rare, but I pushed the thought aside that it could've been caused by isotretinoin.
I'm happy that for these past years I was in a loving relationship and my girlfriend didn't blame me for not being the performing stud I could've been. I had my ups and downs and was able to have sex, but arousement is quite difficult and sometimes need a lot of manipulation to keep it stiff, this is quite embarassing for a male that has a hot girlfriend laying next to you naked. Also I am able to ejaculate, but somehow the orgasms aren't as powerful as they used to be. In addition to sexual side-effects I've noticed that I rarely get excited of anything special, don't get me wrong, I love hanging out with my friends and doing stuff, but all the time I have a feeling that I'm supposed to feel little bit more and I'm only faking my emotions.
Until recently I wasn't eating healthy/exercising too much, but I wasn't overweight, but more like little chubby. I rarely, or never got morning wood and in the early '14 I decided to set up a journey to heal myself for being able to enjoy sex again and bring back those morning stiffs. The journey began with intense sports, eating healthy and loosing some weight. I went to the gym 3-4 times a week, did 1-2 10km runs / week and excluded wheat, refined sugar, extra fat from my diet and also I stopped masturbating/having sex. I felt more powerful, my mind was a lot clearer and I the anxiety that had been chasing me for years was gone. After maybe 4 months of this lifestyle change I experienced something that I haven't had since starting the treatment: I ejaculated during sleep and it happened again after a while. This was a very big thing for me and it lightened my mood very much, I thought I was finally healthy! But then happened something that has happened to many individuals thinking they're healthy - I didn't go to the gym too often, I added the treats, pizza, buns, back into the diet, started drinking alcohol again and the downward spiral was happening in full power. I felt weaker, more depressed and said goodbye to the feeling I had after the nightly surprise ejaculation.
Now I've jumped back to the horse and decided that I will get healthy no matter what! I won't give up even though sometimes I've felt like it. Next up is picking up the weight lifting and a healthy diet. I will keep posting here of my progress. Together we can resolve this, let's not give up!
Best regards,
AccuJor
More drugs to treat the side effects of the first drug is certainly NOT the answer , fact is Accutane is a CHEMO drugs hence the harsh / life long side effects depending on each individuals make up some have worse sides than others it's a gamble with your health big time what kind of devastating side effect
will you have in the future ? no one knows heck they don't even know " the exact mechanism of action " Roche states ..... sure thing.
Chemotherapy drugs are considered " black box " drugs in other words they are the most toxic drugs big pHARMa makes black box means " DEATH " can be a side effect , so a drug used to treat brain cancer and pancreatic cancer is used to treat pimples that's just brilliant wait .... I don't think any of us had CANCER we just had a few pimples . I just wish the doc would have told me I am ingesting a chemo drug no doubt I would not have taken it had I known this drug
would have life long side effects.
For people who have severe cystic acne well I can see why they were / are desperate enough to take a chemo drug for the rest of us this drug should never have been offered to us in the first place. Fact is many of us have permanent side effects and there is no way around that in other words we have to live with it.
It is what it is . To be honest I think most derms don't even deserve a job there basically drug dealers just like allopathic docs , best to avoid.
People with severe cystic acne make up less than .01 percent of the population fact and severe acne usually stems from early childhood treatment with anti- life biotics basically destroying the young immune system for minor things like ear infections / coughs the whole system is a joke.
I still think CBD oil and or RSO oil is the best treatment protocol for accutainted people .
Yeah, youre right of course. I saw the superb Dr Pezzi stuff on the net and i was aware of the double meaning in my text. But just wanted to find out a little bit more about this. 2/3 people that fully recover right after stopping finasterid. Wanted to know if there are cases where it didnt worked and stuff like that. Dont wanted to rush me or somebody else into something here.
When i imagine ill be stuck in this for years and symptoms maybe get worse. Dont know, post finasterid symptoms doesnt sound that scary when you already have most of them. But again, im really not too much into this idea, just wanted to gather information. Taking pills for other pills side effects shouldnt be the final answer.
Saw palmetto IS natural and safe but not the best treatment for accutainted victims that being said it surely didn't kill me in fact I got some amazing hair growth out of it and would possibly consider it in the future , it is however a potent DHT blocker so..... take it with a grain of salt.
I have been eating Moringa leaves with good results. It's the most nutrient-dense plant in the world I have read, and was the NIH's botanical of the year recently. I like it because it makes my body feel energized and healthy. It has a lot of amino acids as well as vitamins and minerals. It improves dopamine, serotonin and norepinephrine levels among other benefits. Moringa contains vitamin A but I am not too worried. Haven't experienced joint pain in a while. I like it.
I have been eating Moringa leaves with good results. It's the most nutrient-dense plant in the world I have read, and was the NIH's botanical of the year recently. I like it because it makes my body feel energized and healthy. It has a lot of amino acids as well as vitamins and minerals. It improves dopamine, serotonin and norepinephrine levels among other benefits. Moringa contains vitamin A but I am not too worried. Haven't experienced joint pain in a while. I like it.
I forgot to mention: Maca root powder in small doses has been improving my sex drive and all the good physiological expressions of it. It supposedly also helps with dopamine levels. For liver cleansing and rebuilding, the most low-impact and high output substance I have found is simply organic liquid chlorophyll. I can't recommend the Moringa highly enough for well-being. Was thinking about making a Rick Simpson-type oil extraction from it. Feels great mixed with warm (not hot) water. Both Maca and Moringa also provide much needed iodine, which I have touted here before, and which may be part of Maca's legendary hormone-balancing effects.
It's a POISON what do you expect no one knows exactly what this stuff has done to us , I have no doubt that it shortened our lives , for people who are reading this and contemplating taking it , DON'T there is a trap waiting for you at the derms office , don't fall for it. Clean up your diet instead , find your trigger foods , pimples are harmless Accutane is NOT and side effects are LIFE LONG and can range from mild to harsh , it's like playing Russian Roulette with your LIFE so you have to ask yourself do you feel lucky punk well do you....
People with severe cystic acne make up less than .01 percent of the population fact and severe acne usually stems from early childhood treatment with anti- life biotics basically destroying the young immune system for minor things like ear infections / coughs the whole system is a joke.
While I'm totally against the over prescribing of antibiotics (or any drug for that matter) I don't think that saying 'severe acne usually stems from early childhood treatment with anti-biotics' is an accurate statement. My uncle had severe acne and did not take antibiotics much growing up. He still had severe acne. So do many people on this site who didn't take antibiotics. Then there are people who had antibiotics through childhood who DON'T have severe acne.
For those affected by Accutane though, you have my sympathies. I would still continue to check the endocrine system thoroughly if finances allow. In the meantime all you can do is supplement with stuff.
Have you all heard of fucoxathin?
http://en.m.wikipedia.org/wiki/Fucoxanthin
There's the wiki on it.
Research on how fucoxanthin may have preventive effects on cancer is also being done. Many studies show that it aids in anti-proliferation, cell cycle arrest, apoptosis induction, suppression of angiogenesis, and anti-drug potential. Without reducing its therapeutic efficacy, fucoxanthin could also reduce the toxicity that comes with the use of conventional medicine. More research in animal models of disease is needed to be done to obtain more conclusive evidence on the molecular basis of fucoxanthin action. [4]
Just a thought!
I never said Saw Palmetto worked lol, Just that I was going to try it, At that time i didn't know much about anti-androgens, now I live by that. It made my skin drier and yah my hair stopped shedding as much, but i think it just aggravated things more like any anti-androgen. I've reduced all of my supplements to 225 billion probiotic, collagen in powder form, and LDN for joint pain. Don't think I could be doing any better. Oh yah, still gluten free as my tolerance to that has not gone away. i did one liver flush which got a lot of "Stones' out, still am skeptical but i did feel better for about a week and change afterwards, but it slowly wore off. It did temporarily help with my food intolerances which was weird. I'm doing another this week. The most important thing to do is to stay hydrated, and there really is not much of a need for epsom salts apparently during but i'm too afraid to try it without. Again, I'm not recommending anyone go and do this, I'm just letting you all know what I;m doing. I'll report back. If I die,. it was for the CAUSE. jk. I've done it before and it was painless. Until next time. 
Anybody else's triglycerides affected from taking accutane? Unbelievable, 5 years later and I'm still borderline high.
The same here with cholesterol.I can't believe how many deep changes this poison has done to us.
My cholesterol has always been optimal, just kinda scary to have triglycerides in the 190's for 5 years now, all for a clear face, smh.
09eric09 check your blood glucose levels.High blood glucose goes hand in hand with high triglycerides.I believe our metabolism has been impaired post accutane.I say this because in general i feel colder apart from having higher cholesterol and higher glucose levels.I can't believe how dermatologists and doctors still believe that accutane acts on the skin to get rid of acne.It is obvious that other changes occur which change the brain and the immune system which then change the skin to cure acne,this is why we get so many brain related and immune related side effects(autoimmune diseases,allergies etc),as brain and immune system are closely related and communicate via neuroendocrine signals and via unknown mechanisms.This confirms the study of B.Melnik which states that upregulation of survival genes such as foxo are responsible for the mechanism of action of isotretinoin.The thing is even this author is unable to explain why these changes persist.(here we have to admit that epigenetic longlasting/permanent chyanges occur).
What about the theory that our androgen receptors are damaged, and despite our blood levels showing normal levels, perhaps we need more androgens? I;ve seen this out there before, with really no research...but doesn't this kind of make sense given the intolerance to ANTI-androgens? Has anyone tried low dose androgens to test this out? Androgens are responsible for collagen synthesis, texture of the skin, and a bunch of other metabolic functions. Can't we all technically have some form of receptor dsyfunction that can be reversed if looked at through the right lens?
What about the theory that our androgen receptors are damaged, and despite our blood levels showing normal levels, perhaps we need more androgens? I;ve seen this out there before, with really no research...but doesn't this kind of make sense given the intolerance to ANTI-androgens? Has anyone tried low dose androgens to test this out? Androgens are responsible for collagen synthesis, texture of the skin, and a bunch of other metabolic functions. Can't we all technically have some form of receptor dsyfunction that can be reversed if looked at through the right lens?
the upregulated survival gene theory explains all our side effects:slow metabolism,low libido,mental side effects,overreactive immune system causing autoimmune disease etc.Upregulated foxo genes downregulate the androgen receptor so there you have it.Have a look here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3219165/. (see:Isotretinoin, FoxO1 and Suppression of Androgen Receptor Transactivation).